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Huntington Disease Community Education Day - April 11, 2015

Learn about current trends in Huntington Disease (HD) research and medications. Several break out sessions to choose from and a concurrent track for youth impacted by HD.

When: Saturday, April 11, 2015
Time: 9:00 AM - 4:15 PM
Location: Westminster Canterbury Richmond, 1600 Westbrook Avenue, Richmond, VA 23227
Cost: $10 per person and includes lunch, afternoon refreshments, and materials.
Registration: Online

Agenda:

9:00 AM

Registration Opens

9:15 AM

Optional Pre-Conference:  HD 101 – A Brief Introduction & Review
Ginger Norris, MGC, CGC
Genetic Counselor & Clinical Research Program Manager
Huntington Disease Program, VCU Parkinson's & Movement Disorders Center

10:00 AM

Welcoming Remarks
Dr. Claudia Testa
Huntington Disease Program, VCU Parkinson's & Movement Disorders Center

10:15 AM

Updates and Ongoing HD Research
Dr. Claudia Testa

11:15 AM

Medications
Dr. Emily Peron

12:00 PM

Lunch

1:00 PM

Break Out Sessions

 

A.  Enrichment Session
1:00 – 2:00 – Gentle Yoga
                        Sarah Humphries
2:00 – 2:15 – Break
2:15 – 3:15 – Occupational Therapy Resources
                        VCU Department of Occupational Therapy

 

B.  Care for the Caregivers
      1:00 – 2:00 – Coping Skills
                              Dr. Sarah Lageman
                              Neuropsychologist, VCU Parkinson’s & Movement Disorders Center
      2:00 – 2:15 – Break
      2:15 – 3:15 – Caregiver Open Discussion
                              Dr. Sarah Lageman
                              Neuropsychologist, VCU Parkinson’s & Movement Disorders Center

 

C.  Practical Information
1:00 – 2:00 – Finding Help and Paying for it
                             Drew Yeannakis, Disability Claims Representatives
2:00 – 2:15 – Break
     2:15 – 3:15 – Making Financial Decisions for the Future
                             Virginia Grigg

3:15 PM

Roundtable Discussion

4:15 PM

Complete Evaluations & Adjourn

Youth Activities provided by Huntington Disease Youth Organization (HDYO)
open to children ages 14-19 facilitated by a youth social worker

10:15 AM - 4:15 PM

Structured activities and discussion

 

 

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