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Virginia Commonwealth University

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Upcoming community presentations

6th Annual Reasons for HOPE for Essential Tremor - March 21, 2015

Treatment for the Body and Mind

Learn about current trends in Essential tremor (ET) treatment and research, and try out new skills to live well with ET.

When: Saturday, March 21, 2015
Time: 10:30 AM - 4:15 PM
Location: VCU Larrick Student Center, 900 Turpin Street, Richmond, VA 23219
Cost: $10 per person and includes lunch and afternoon refreshments, parking, and materials.
Registration: Click here to register online.

Agenda
Morning Session: Essential Tremor Update - Claudia Testa, MD, VCU PMDC

Lunch: 12:15 pm

Afternoon Session: Mindfulness - Therese Cash, MS, Doctoral Candidate, VCU

Breakout #1 (choose one)

  • Assistive devices for daily living (hands-on) - Melissa Oliver, OTR/L Assistive Technology Program Coordinator, McGuire VAMC
  • EnJoy Yoga (experience gentle chair stretches) - Sarah Humphries, E-RYT200

Breakout #2 (choose one)

  • Living with DBS (patient panel & testimony) - Miriam Hirsch, RN & Jackie Johnson, RN, PADRECC DBS Nurses
  • Nia/Laughter Yoga (natural, playful practices) -Valerie Pace

 

Huntington Disease Community Education Day - April 11, 2015

Learn about current trends in Huntington Disease (HD) research and medications. Several break out sessions to choose from and a concurrent track for youth impacted by HD.

When: Saturday, April 11, 2015
Time: 9:00 AM - 4:15 PM
Location: Westminster Canterbury Richmond, 1600 Westbrook Avenue, Richmond, VA 23227
Cost: $10 per person and includes lunch, afternoon refreshments, and materials.
Registration: Online, opening March 6, 2015

Agenda:

9:00 AM

Registration Opens

9:15 AM

Optional Pre-Conference:  HD 101 – A Brief Introduction & Review
Ginger Norris, MGC, CGC
Genetic Counselor & Clinical Research Program Manager
Huntington Disease Program, VCU Parkinson's & Movement Disorders Center

10:00 AM

Welcoming Remarks
Dr. Claudia Testa
Huntington Disease Program, VCU Parkinson's & Movement Disorders Center

10:15 AM

Updates and Ongoing HD Research
Dr. Claudia Testa

11:15 AM

Medications
Dr. Emily Peron

12:00 PM

Lunch

1:00 PM

Break Out Sessions

 

A.  Enrichment Session
1:00 – 2:00 – Gentle Yoga
                        Sarah Humphries
2:00 – 2:15 – Break
2:15 – 3:15 – Occupational Therapy Resources
                        VCU Department of Occupational Therapy

 

B.  Care for the Caregivers
      1:00 – 2:00 – Coping Skills
                              Dr. Sarah Lageman
                              Neuropsychologist, VCU Parkinson’s & Movement Disorders Center
      2:00 – 2:15 – Break
      2:15 – 3:15 – Caregiver Open Discussion
                              Dr. Sarah Lageman
                              Neuropsychologist, VCU Parkinson’s & Movement Disorders Center

 

C.  Practical Information
1:00 – 2:00 – Finding Help and Paying for it
                             Drew Yeannakis, Disability Claims Representatives
2:00 – 2:15 – Break
     2:15 – 3:15 – Making Financial Decisions for the Future
                             Virginia Grigg

3:15 PM

Roundtable Discussion

4:15 PM

Complete Evaluations & Adjourn

Youth Activities provided by Huntington Disease Youth Organization (HDYO)
open to children ages 14-19 facilitated by a youth social worker

10:15 AM - 4:15 PM

Structured activities and discussion

Roof Terrace

 

Sign up for our HD mailing list to receive an update when the final agenda and registration become available.

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