VCU

Resources for patients and caregivers

Click a topic below to be directed to the listing of resources.

Adult day centers	Home modification/affordable housing
Aging resources	Huntington disease resources
Assistance	International movement disorders organizations
Assistive technology	Medical equipment
Caregiver resources	Other movement disorder resources
Clinical trials	Parkinson's exercise resources
Community resources	Parkinson's organizations
Deep brain stimulation	Parkinson's support groups
Essential tremor organizations	Veteran's resources
Essential tremor support groups

Adult day centers

• A Grace Place
• Beth Sholom Adult Day Center
• Circle Center Adult Day Services
• Hanover Adult Center
• Riverside PACE
• Swift Creek Day Center
• VCU Health Systems Elder Care
• VADHSA: Virginia Adult Day Health Services Association

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Aging resources

• American Association of Homes and Services for the Aging
• Association of Area Agencies of Aging
• Center for Excellence in Aging and Geriatric Health
• Department of Aging
• National Council on Aging
• National Institutes of Health Senior Health

• Senior Advocate
• Senior Navigator
• Virginia Center on Aging

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Assistance

• Benefits.gov Federal Benefit Finder
• Melvin Weinstein Parkinson's Foundation - medication assistance resources
• Patient Advocate Foundation
• Virginia Department of Medical Assistance Services

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Assistive technology

• Assistive Technology System

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Caregiver resources

• American Parkinson's Disease Association - Lotsa Helping Hands Coordination Service
• ARCH Respite Locator
• Jewish Family Services holds a free Caregiver Support Group on the third Thursday of each month from 2:00 p.m. to 3:30 p.m. All caregivers are welcome to join us.
  • Jewish Family Services • 6718 Patterson Avenue • Richmond, Virginia 23226
    (804) 282-5644 or information@jfsrichmond.org
• National Alliance for Caregiving
• National Family Caregivers Association

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Clinical trials

• VCU Parkinson’s and Movement Disorders Center Clinical research projects
• Fox Foundation Trial Finder
• Clinical Trials.gov - National Institutes of Health Clinical Trials Registry
• VCU Clinical Trials Listing

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Deep brain stimulation

• Dystonia Medical Research Foundation - Deep Brain Stimulation information
• International Essential Tremor Foundation - surgical treatments for essential tremor
• National Parkinson's Foundation - information on deep brain stimulation
• NIH - National Institute of Neurological Disorders and Stroke - Deep Brain Stimulation for Parkinson's
• Parkinson's Disease Foundation - Deep Brain Stimulation for Parkinson's Disease guide

Community resources

• Virginia Easy Access
• Senior Connections
• Jewish Family Services

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Essential tremor organizations

• International Essential Tremor Foundation
• Tremor Action Network

Essential tremor support groups

• Virginia Essential tremor support group listing

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Home modification / accessible housing

• Home Mods Organization
• Access Virginia

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Huntington disease resources

• Genetics Home Reference
• Genetics and Rare Diseases (sponsored by NIH)
• The Hereditary Disease Foundation
• Huntington's Disease Advocacy Center
• Huntington's Disease Lighthouse Family
• Huntington's Disease Society of America
• Huntington's Outreach Project for Education, at Stanford

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International movement disorders organizations

• International Essential Tremor Foundation
• Worldwide Education and Awareness for Movement Disorders (WeMove)
• World Parkinson’s Disease Association

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Medical equipment

• Active Forever
• Central Virginia MS Society Equipment Exchange
• FREE: Foundation for Rehabilitation Equipment and Endowment
• NewWell Fund
• Patterson Medical

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Parkinson's exercise resources

• Blacksburg Dance for PD
• Chickahominy YMCA
• Dance for PD – Simply Ballroom
• John Rolfe YMCA
• PADRECC Exercise Group
• Rappahannock Westminster-Canterbury : Fit to Move

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Parkinson's organizations

• American Parkinson’s Disease Association
• Davis Phinney Foundation for Parkinson’s
• Michael J. Fox Foundation for Parkinson’s Research
• National Parkinson Foundation
• Parkinson’s Action Network
• Parkinson’s Disease Foundation
• Veteran’s Affairs Parkinson’s Disease Research, Education and Clinical Centers (PADRECC)

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Parkinson's Support groups

• Eastern Shore Parkinson's Support Group
• Hampton Roads APDA Chapter
• Listing of support groups in Virginia
• Northern Neck / Middle Peninsula Parkinson's Support Group
• Northern Neck / Middle Peninsula Parkinson's Care Partner Group
• Richmond Metro APDA Chapter
• Southeast PADRECC (Richmond) Parkinson's Support Group at McGuire Veteran's Medical Center
• Young Onset - Richmond
  Fourth Sunday of each month, 2:00 PM at Saint Paul Lutheran Church
  Contact Andrea Perseghin - (804) 828-3747 or pdcenter@vcu.edu
  
• Young Onset - Virginia Beach
  First Saturday of the month in the Bayside Public Library meeting room, 10:00am to 11:00am.
  Contact Bob Johnson - (757) 961-8564 or VBYoungOnsetPD@gmail.com

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Resources for other movement disorders

• Dystonia Medical Research Foundation
• Huntington’s Disease Society of America
• International Essential Tremor Foundation
• National Ataxia Foundation

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Veteran's resources

• Southeast (Richmond) Veteran’s Affairs Parkinson’s Disease Research, Education and Clinical Centers (PADRECC)

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The VCU Parkinson's and Movement Disorders Center does not endorse organizations sponsoring linked resources/websites and does not endorse the products/services offered or views expressed.

 

• Virginia Commonwealth University
• VCU Parkinson’s Disease Center
• Contact us
• Updated: 03/07/2013